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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18, 2024 | Replies (1907)Comment receiving replies
Hi, I just came across this forum. I've had PMR for 2-1/2 years now, and like so many others who's stories I've read, I just woke up one day unable to move without a ton of pain and stiffness. I needed help getting up and down until I was put on Prednisone. I was never able to taper off it, so I was put on metho injections. I felt much better, but then had to discontinue during a surgical recovery. When I stopped the injections I thought maybe I was in remission, but it was right back within a month. I then transitioned to Meloxicam, which didn't seem as effective as the Metho, but I was more comfortable not having to take the Metho. Recently I had to go off the Meloxicam for 3 months following spine surgery, so I'm miserable again. One more month and I'll go back on the Meloxicam. In the meantime I've been trying a diet of non-inflammatory foods (no wheat or anything with lectins). Now I don't know what is worst the diet or the pain. My digestive system is happy with the diet, and I lost 10 lbs (I didn't need to lose), but unfortunately it hasn't had any effect on my PMR symptoms. I'm just praying year 3 is the end!
Replies to "Hi, I just came across this forum. I've had PMR for 2-1/2 years now, and like..."
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Hello @dalet72, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. It sounds like your PMR journey has been difficult. It's good that you are focusing on diet which can really help but I don't think it's the total answer. Here's some diet related information that you have seen and I pulled out a small section here to mention
"No diet is proven to make PMR significantly better or worse for most people, and everyone reacts differently to foods. Pay attention to what foods seem to help you feel your best and keep track of them. It’s also important to have a well-balanced diet and to eat from all major food groups. Following are some foods that may be beneficial to people with PMR." -- Can Diet Affect Symptoms of Polymyalgia Rheumatica?: https://www.healthline.com/health/polymyalgia-rheumatica-diet
My first occurrence of PMR took 3-1/2 years to taper off of prednisone. The last six months of that was going back and forth weekly between 1 mg and 1/2 mg until I was finally able to stop taking prednisone with a minimum amount of aches which went away after I got up in the morning and started moving.
Do you like to exercise as part of a daily or weekly routine?