← Return to Has anyone taken gentomicin?

Discussion

Has anyone taken gentomicin?

MAC & Bronchiectasis | Last Active: Aug 23, 2021 | Replies (14)

Comment receiving replies
@sueinmn

Hi Brenda -
I was able to find this article, which sounded very positive on the use of Gentamicin plus 7% saline. https://www.nature.com/articles/s41598-020-61413-4 It's very heavy reading, but contains links to some other articles at the end.

I hope it helps. I will definitely talk to my pulmonologist and ID doc about giving it a try if I have to be treated again! The Big 3 almost did me in in 2019.

Sue

Jump to this post


Replies to "Hi Brenda - I was able to find this article, which sounded very positive on the..."

Thank you for finding and sharing this article, Sue. I haven't read the whole (long) report on the study but what I did read is fascinating.

First, the report is from a study in Taiwan. Don't you love that scientists in other countries are also working on our disease?

This is what I gathered from what I read: My gentomicin is compounded and is kept frozen. When I called the pharmacy about defrosting she stressed that the medicine was made from my doctor's orders specifically for me. I was confused about why an antibiotic is made just for me.

The study is looking at the antibiotic gentomicin mixed (compounded) with 7% hypersonic saline and concludes that inhaling the combination drug not only kills more pseudomonas than gentomicin alone but also affects biofilm in lungs which provides a hospitable place for pseudomonas to grow.

Because I can't use 7% saline or 3% for that matter, my vials consist of gentomicin compounded with .9% saline. I trust Dr McShane that my combination will work.

Jennifer, if you read this, are your vials of gentomicin compounded with 7%? Curious!

I still need to figure out how to schedule inhaling the compounded gentomicin and airway clearance which in my case consists of nebbing .9% saline, aerobika and vest. This morning's plan did not work out but I did get it all done eventually despite a bronchospasm scare.

Thanks for the research, Sue, and for everything you do for the group.

Rita