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MAC & Bronchiectasis | Last Active: Aug 23, 2021 | Replies (14)
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Replies to "Hi Brenda - I was able to find this article, which sounded very positive on the..."
Thank you for finding and sharing this article, Sue. I haven't read the whole (long) report on the study but what I did read is fascinating.
First, the report is from a study in Taiwan. Don't you love that scientists in other countries are also working on our disease?
This is what I gathered from what I read: My gentomicin is compounded and is kept frozen. When I called the pharmacy about defrosting she stressed that the medicine was made from my doctor's orders specifically for me. I was confused about why an antibiotic is made just for me.
The study is looking at the antibiotic gentomicin mixed (compounded) with 7% hypersonic saline and concludes that inhaling the combination drug not only kills more pseudomonas than gentomicin alone but also affects biofilm in lungs which provides a hospitable place for pseudomonas to grow.
Because I can't use 7% saline or 3% for that matter, my vials consist of gentomicin compounded with .9% saline. I trust Dr McShane that my combination will work.
Jennifer, if you read this, are your vials of gentomicin compounded with 7%? Curious!
I still need to figure out how to schedule inhaling the compounded gentomicin and airway clearance which in my case consists of nebbing .9% saline, aerobika and vest. This morning's plan did not work out but I did get it all done eventually despite a bronchospasm scare.
Thanks for the research, Sue, and for everything you do for the group.
Rita