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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@mcd2021

I was fortunate that my PCP and rheumatologist both took me seriously. And I'm not the only patient they've seen with similar reactions. But they seem to be the exception to the rule. You are 100% correct that we are among a small percentage of people who had a serious but non-life threatening reaction. But that doesn't give providers the right to not take people seriously and dismiss the possibility that the vaccine could be responsible for their issues. My daughter has had tachycardia for 4 months after one shot of Pfizer. Her PCP told her it was anxiety and to see a psychiatrist! It was so bad she ended up seeing a cardiologist who confirmed the tachycardia and prescribed medication to slow her heart down. But even he refused to admit the possibility that the vaccine was responsible, even though post-vaccination heart issues have been widely reported It just astounds me.

How is your neuropathy now? Has it lessened at all? Hope you have found something that helps you.

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Replies to "I was fortunate that my PCP and rheumatologist both took me seriously. And I'm not the..."

It is at least affirming to have recognition of the negative effect the vaccine has had on many. I’ve always advocated for being vaccinated, but although a booster is highly recommended for us transplant folks I will definitely not be getting one.

My neuropathy spiked to new highs after both vaccine shots. It’s fairly stable now, but I definitely have good and bad days since the underlying cause is Sjogren’s. I think sticking to walking a couple miles each day, no sugar, white flour, and low carb is helping.

I’m glad your daughter is doing better. How are you?