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Antiphospholipid: Weird symptoms, don't understand what’s going on
Autoimmune Diseases | Last Active: Apr 4, 2023 | Replies (25)Comment receiving replies
I had fast heart rate came on in April. In and out of hospital. High blood pressure. Holster monitor. Keep telling me nothing wron, however, I have gone from very healthy, active to couch potato. Swollen lymph nodes and episodes of hot face flushing and almost passing out, then my bowels empty out. I’m weak and not able to do much of anything. No answers from medical Doctors and have had every test there is. I’d like to know if you get any answers.
Replies to "I had fast heart rate came on in April. In and out of hospital. High blood..."
@jwillits8 Looks to me like a good case for some autoimmune sleuthing. There are many good places to start, including http://www.omim.org, and http://www.hpo.jax.org, etc. Even better, and probably easier, are places like http://www.sequencing.com, http://www.ambry.com, Dante Labs.com. But first, make a list of all your symptoms and signs which you can use to sort through the info you will get. I have all the symptoms you mention, including wearing the Holter monitor and other medical equipment. I have ended up with a group of AI hits, including Myeloma>Amyloidosis>Gelsolin, Muscular Dystrophy (FKRP and FKTN with Walker Warburg), Cardiomyopathy, Encephalopathy, and a variety of cancers (Basal, melanoma, and others). Anyway, I believe you should think more in terms of "multiple" things gone wrong. OMIM.org and HPO.JAX. (human Phenotype Ontology) specialize in these cases. They are terrific help. oldkarl
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