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Replies to "@hopeful33250 He had woken up around 930am. Went to the kitchen to take the worst medicine..."
Epilepsy & Seizures | Last Active: Aug 23, 2021 | Replies (6)
Comment receiving replies
Replies to "@hopeful33250 He had woken up around 930am. Went to the kitchen to take the worst medicine..."
My heart goes out to you @cmackia2020. What a frightening time for your whole family.
I can understand your effort to keep SUDEP on the death certificate and to make it known to other epilepsy patients.
Have you ever been involved with an epilepsy national organization or support group to make your voice heard? I realize that might take a lot of energy and time and that is probably something that you don't have after the trauma you have been through.
Please keep in touch with Mayo Connect and continue to post.