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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: May 26 10:50am | Replies (6004)

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@luann262

Hi Cathy’
Wow- we have a lot in common. So… I see a neurologist at Yale. Basically, he has just slowly increased the gabapentin to now I’m at the max- I will say if I miss a dose or am late, I can feel it as a nasty reminder so I guess it helps. I worry about what it is doing to my brain. He also put me on 30 mg Cymbalta. It is supposed to help? Maybe with anxiety and depression.
He also prescribed Tramadol, as needed. I’ve been taking it lately every day in the afternoon and again at night. Doesn’t seem to do much but no luck with Aleve or Advil. I got my medical marijuana card and have been using a the/Cbd blend at night. That helps some to allow distraction and some dulling of the general pain. Also my daughter who is a nurse told me about Voltarex cream - helps some. But nothing touches the toes. The ice pick pain is awful as you know! I wish I had Novocain to stick in there! I tried lidocaine cream - nothing. I’ve asked for an mri but neurologist says it won’t show anything. Wonder if there’s something in my lower spine putting pressure on nerves but he doesn’t buy it.
If I had a Mayo Clinic near me, I’d go.
Has yours traveled up your legs? Mine is starting …
Yes! Let’s keep in touch! I finally found someone who understands!
If you don’t have this, you have no idea!
Luann

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Replies to "Hi Cathy’ Wow- we have a lot in common. So… I see a neurologist at Yale...."

Have you tried a product called NerveRenew? I have not tried it but with their ads there are a lot of people who swear by it. It contains several B vitamins, Alpha Lipoic Acid and other natural herbs. I printed out the incredience and showed it to my Neurologist and he said it could not hurt. I am going to order some and give it a try. I am to taking g
Gabapentine and want to get off because it has long term side effects, mainly effecting congnotive function.