I have had unexplained falls, backwards, sidewards, and full front, for four years... increasing to 15 to 20 per day that I usually stop with a reflex hand touch on something to steady myself. As a medical professional (research professor), I have kept reading the literature and recently have come upon a very rare condition (5 cases per 100,000) that describes my symptoms ... progressive supranuclear palsy (PSP)... ICD code 23.1. Mayo Clinic has significant experience with this (they see 500 patients a year from all over the world) and I am going to contact them this week to see about getting an appointment. Need PET brain scan to confirm the diagnosis. PSP is caused by overproduction of a protein in the brain, tau, that accumulates in certain defined areas of the brain that govern movement, balance, swallowing. Getting a confirm diagnosis could save you many many rounds of testing resulting in maybe this maybe that conversations.

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