← Return to Temporal biopsies to diagnose GCA: What's your experience?

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@zaa

My neck was also very sore, had terrible sinus issues, dry cough and currently can’t regain any of my weight back. I’ve lost over 25+lbs and skin is sagging from the loss muscle. Always worked out so I’m also trying to gain it back but learned yesterday that you can easily overdo it. I think the diagnosis is PMR for now. I was also put on 40 mg but after almost 2 months I’m down to 15. I’ve changed my diet to no gluten, limited amount of sugarl, lots of protein, fats and veggies. I recommend reading The Autoimmune Solution” by Amy Myers. This diet however is not going to add weight so I add on extra smoothies etc between meals. Going in for DEXA scan soon and very scared at what that will tell me.

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Replies to "My neck was also very sore, had terrible sinus issues, dry cough and currently can’t regain..."

Hi zaa, I found the prednisone stimulated my appetite - so I've gained some weight back. I've always been careful about what I eat and read about people who gained so much weight on prednisone that they got diabetes, etc. - so I'm still careful. My skin was sagging too. I started back doing strength training for osteoporosis with some of Carol Michael's workouts and I walk for an hour about five times a week. You can look up Carol Michaels on Youtube. My skin isn't as saggy anymore. I bought a vibration plate exercise machine as there are studies showing that whole-body vibration therapy can increase bone density. Just been doing that for a couple of weeks. Also added a probiotic supposedly good for bone density, L. Reuteri and Vitamin K1 in addition to the other supplements I take. Thanks for the references to the books, I'll check them out. By the way, symptoms of my PMR were incredible pain and stiffness, my whole body from the neck down. They went away after nine or ten months, but then the GCA set in. Just try not to get discouraged. I feel so much better now. I hope you do too.