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Appointment Reschedule

Visiting Mayo Clinic | Last Active: Aug 22, 2021 | Replies (5)

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@jenniferhunter

@cmackia2020 Can you explain a bit more about your mom's condition? Was she supposed to have sinus surgery at Mayo and that was cancelled to take a surgery sooner somewhere else? Are you able to reach out to one of the Mayo doctors that were previously scheduled? Once a patient is seen at Mayo, they will refer them to other Mayo specialists as needed depending on what they find. I have heard that there are many patients seeking to be seen in neurology and that it is difficult to get an appointment. Is your mom having symptoms or is there any imaging suggesting that she should be seen by a neurosurgeon? I am a Mayo spine surgery patient, so my acceptance as a patient started with the neurosurgeon who reviewed my case and imaging. He then referred me to a selected neurologist to begin my testing at Mayo and once that was complete, I had my consult with the neurosurgeon. If she has a specific brain related diagnosis, that might be a reason to ask to consult a neurosurgeon rather than a neurologist.

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Replies to "@cmackia2020 Can you explain a bit more about your mom's condition? Was she supposed to have..."

She was not going to have surgery at Mayo. It was initial testing to see what the course of action would be. She has had migraines for 30+ years; constant pneumonia since 2019; esophageal issues (endoscopy done in July 2021 found kink in esophagus). The sinus surgery was to go near the frontal lobes of her brain to break up 30+ years of crusted matter and blood clotting. This was not done from what I can tell due to her pain in the brain not lessening. What she describes it as is a knife being jabbed in her ears. Brain floating. No relief with OxyContin or Hydrocodone prescribed from the surgeon. No relief from prescribed Sumatriptan or Fieoricet. Nothing works. Furthermore, it radiates down into the neck and spine. I’m very scared as to what is going on and had hope that the surgery would at least ease the pain on her brain. It hasn’t. Therefore, I’m wanting to make the 15hr drive up to Mayo in Rochester as I know what y’all can do. I’ve seen it with my fiancé’s sons girlfriend’s stepmother who is getting exceptional care right now there.