← Return to Temporal biopsies to diagnose GCA: What's your experience?

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@tsc

Hi Zaa, My symptoms on the right side were the inability to see out of my right eye twice. It didn't last long and went away. Short stabbing pains on the right side of my face from the right ear over to the nose. They started as strange pulsating feelings, but became stabbing pains, occurring more frequently. One day I counted 25. On both sides, I had a terrible stiff neck and neck pain that started in the back of the head on both sides and lasted for months, until prednisone was increased to 40 mg a day; also, dry cough for a couple of months. My scalp was tender for a few weeks. I also had low energy, due to anemia, and lost about 12 pounds, due to a lack of appetite. I've been diagnosed with osteoporosis and started Fosamax. I'm doing all I can to build my bone density so I can get off it sooner vs. later. Did you get a diagnosis?

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Replies to "Hi Zaa, My symptoms on the right side were the inability to see out of my..."

My neck was also very sore, had terrible sinus issues, dry cough and currently can’t regain any of my weight back. I’ve lost over 25+lbs and skin is sagging from the loss muscle. Always worked out so I’m also trying to gain it back but learned yesterday that you can easily overdo it. I think the diagnosis is PMR for now. I was also put on 40 mg but after almost 2 months I’m down to 15. I’ve changed my diet to no gluten, limited amount of sugarl, lots of protein, fats and veggies. I recommend reading The Autoimmune Solution” by Amy Myers. This diet however is not going to add weight so I add on extra smoothies etc between meals. Going in for DEXA scan soon and very scared at what that will tell me.