Last March, My bf diagnosis with neck/throat cancer squamous cell carcinoma. had surgery followed by 6 weeks of cisplatin chemo and proton radiation. With a 98% cure rate. 3 months later petscan and metastasis to a lymph node at end of wind pipe( inoperable). So he was placed on Keytruda in sept last year. They will keep him on Keytruda for 2 yrs. unless the Keytruda stops working or it attacks his organs.
So, his side effects have continued to get worse.
He has pain in his feet, his back, no balance, brain fog, drops things, leg cramps, headaches, stomach aches, very tired, slow with talking, anxiety, confusion when upset, shortness of breath, diarrhea going on 4 months, he has all the symptoms. They tell him he has no cancer. Yet again this last pet scan shows a little flicker on his neck. They ruled it out as cancer and will check it at next petscan in 3 months along with a ct scan. His lung did the same thing. With this being said, the Keytruda is blocking it from full turn on cancer. To me that’s what he should be told. The Keytruda is blocking it. So basically to me he’s not cancer free or in remission. He was told if he goes off Keytruda the cancer will come right back, so it’s not gone. It’s blocked.
I would rather them just be factual to him and tell it the way it is. Then he can plan his life accordingly. See and do things you can now. His quality of life has dramatically changed.
Jim’s cancer is a virus. It laid dormant for 42yrs. It’s hpv16 virus. He got genital warts when he was 26 yrs old. The cure rate is slim once it move to the lung.
So they will not take him off Keytruda till sept 2022. Unless the cancer takes over or the Keytruda attacks his organs.
I guess for him, he doesn’t know anyone that’s in his Cindy or gone through all this. He wants to know their experience’s and outcome.
He wants to know his path. Mayo should share this. People can make better long term choices with knowledge. All he has is hope on a string.
From what I’ve read he has a 20-30% survival rate at end of 2 yrs on Keytruda. He has not been told this, I’ve read it all.
He also has intractable hiccups that started in 2009. Now they can last up to 13 hours a day. He takes a special medication to sleep at night to help his heart. Yep he’s a mess. But I sure love him and his mess.
I wish your hubby all the best, with a great recovery. Hopefully his side effects will diminish quickly.
Oh, look up theRootbrands .com. All natural to help your body get rid of metals and replenish with excellent minerals and vitamins. This doc is a scientist. I actually watch the video thru his glory ministry.
Excellent video.