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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@littlenoise

So, here I am again. I'm wondering how the excess inflammation issue is/was diagnosed.

While my main concern was my tingling/cold/burning feet, I also had swollen fingers and excessive arthritis in my knees (I've always had arthritis in my knees that comes and goes, but is usually controlled with Aleve and Fish Oil). Now I'm wondering if the more intense flares are linked to other vaccines I've had in the past 5 years (both pneumonia shots, shingles, flu, etc.), but not as intense as the Covid, which pushed me into the neuropathy. Seems plausible, but am wondering how the theory can be proved.

After my second course of prednisone (10 mg, 3/3/3/2/2/1/1), my symptoms again went away on Day 3, but returned (but not as severely) by Day 5.

Now, 4 days after my last dose, everything is milder. My feet and calves feel like I'm wearing socks when I'm not. There's very light tingling and they sometimes feel cold ,even though it's 90+ degrees here and rarely lower than 80 degrees in my house), but the burning pain has not returned. I can now put my rings on, so my finger joint swelling has gone down significantly. I've also noticed that I can squat down at work without having to use a hand to pull myself back up... my legs/knees can propell me back upright on their own.

I think I'm officially on the mend from whatever the hell was going on.

I'm still taking the gabapentin, so maybe that's the miracle that is making me feel better, or maybe it's some combination of anti inflammatory, magnesium, fish oil, vitamin d, and b-6 supplement doing the trick. I'll eventually start alleviating these things one by one to see if I can quit taking a meal full of pills every night.

My podiatrist has recommended PT, but I'll probably avoid the expense of that as I continue to improve. If I have a setback, I'll definitely be ringing them to set up an appointment.

For now, I'd really like to know if there's some test that can pinpoint the excessive inflammatory. I'll be due for the booster in a few months (recommendation is 8 months after 2nd dose unless immunocompromised). Unless this can be diagnosed and treated, I'll be waiting as long as possible to opt in. Working in a pharmacy, and being on the frontline for testing and vaccinating, I know I'll have to protect myself eventually. I just don't want to go though this again . If there's some way to prove that's what I've experienced, maybe it can be resolved quicker with future vaccines.

Flu shot season has also arrived. I'll be getting that as soon as I dispense the first flu medication this year.

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Replies to "So, here I am again. I'm wondering how the excess inflammation issue is/was diagnosed. While my..."

Hmm...interesting question. I'm by no means an expert in neuropathies, but it seems most people don't know the exact cause of theirs. Here is what Mayo Clinic has to say https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/symptoms-causes/syc-20352061
I don't know which is worse after vaccine - pain or neuropathy, but they are both telling us our immune system is capable of revving up!
Sue

There's a C-Reactive Protein (CRP) test that you can get from Lab Corp or Quest. There are two versions, regular and High Sensitivity(HS). Regular is more for general inflammation whereas the latter is used more for cardiac inflammation assessment.