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Temporal biopsies to diagnose GCA: What's your experience?
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (19)Comment receiving replies
Interesting! What symptoms were you experiencing more on one side? My whole scalp felt weird and was driving me crazy. My results turned out negative and since my sed rate and C-Rp went down so fast, doc told me it’s highly unlikely I have GCA. It sure seemed like I had it with the scalp issue but feel so lucky….for now. It still seems excessive to me that I was told to do both sides but I’m being apprehensive now on my treatments. I was also told to do bone density infusion but refused. Now that I have my strength back and less brain fog, I want to make intelligent decisions about my health. Thanks for you reply.
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I was just diagnosed with GCA one week ago. Just curious, what did you refuse the bone density infusion?
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Hi Zaa, My symptoms on the right side were the inability to see out of my right eye twice. It didn't last long and went away. Short stabbing pains on the right side of my face from the right ear over to the nose. They started as strange pulsating feelings, but became stabbing pains, occurring more frequently. One day I counted 25. On both sides, I had a terrible stiff neck and neck pain that started in the back of the head on both sides and lasted for months, until prednisone was increased to 40 mg a day; also, dry cough for a couple of months. My scalp was tender for a few weeks. I also had low energy, due to anemia, and lost about 12 pounds, due to a lack of appetite. I've been diagnosed with osteoporosis and started Fosamax. I'm doing all I can to build my bone density so I can get off it sooner vs. later. Did you get a diagnosis?