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Hi, I'm Sherry. Migraines for 15 yrs & now - curly hair

Chronic Pain | Last Active: Aug 24, 2021 | Replies (13)

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@crazy75

I can’t help with the hair changes but do wonder if you’ve found a good migraine specialist. I suffered with Chronic Migraines beginning in 2008.
I had migraines since my teenage years but they got worse after menopause. I searched for someone who would try new medicine and when they didn’t work have me try something else. It took 7 years until I found a headache specialist and she’s been a lifesaver. She didn’t give up on me and if it was out there she offered it to me. Botox and different preventatives. I am now using Aimovig and have nerve blocks every two months. She always gets back to me via email or even with an after hours call back if I have an issue. I am happy to report she has gotten me to the point I am only experiencing two to three migraines a month. It was a long road but I thank her continually at every visit.

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Replies to "I can’t help with the hair changes but do wonder if you’ve found a good migraine..."

Hi, crazy75. Unfortunately, we don't have actual migraine specialist in our area. Closest one is 90 miles away, but I have found a terrific neurologist after 3 other doctors and almost 4 years. She has been great about trying different meds and if they are not working, we move on to something else. I've been on way too many meds to list, but some of the newer ones are the Sphenocath, which worked great the first treatment for 3 months, ok the second treatment and didn't work at all on the third. I was on Aimovig for about a year and a half. Cut migraines in half in the beginning but gradually worsened until they weren't doing anything at all. Then we tried Botox and I got worse! I had a bad reaction to it and my head constantly felt like I had a giant 4" rubber band around my head like a sweat band. I could not move anything above my eyelids and there was constant pressure whether I had a migraine or not. That was in May and it's still not completely gone. Next up is Ajovy autoinjectors, which has just been submitted to Medicare for approval which is one of my biggest problems. Medicare doesn't like to cover the newer meds which are very expensive. My husband has a very rare antibody blood disorder, so he also needs some expensive meds. So, there have been times when I simply haven't been able to afford $1000.00 a month for only 1 prescription, when between the two of us, we have around 18 - 20 of them. But I haven't given up! I'm so glad to hear of your success and wish you the best in the future. You have given me renewed hope that some day, it will get better! Thanks so much, Sherry