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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi Cathy-
I can't believe I reaad this! I have a toe on my left foot that starts to fire up in the afternoon and is like an ice pick stabbing pain. Up all night and nothing helps. Now this week I have 2 toes on my right foot doing it- I want to amputate them! FYI- I have had ideopathic bilateral neuropathy in both feet for about 10 years. I take 3300 mg gabapentin, cymbalta and klonopin ( 1 mg at night ) . Nothing helps with the toes. Luann
Replies to "Hi Cathy- I can't believe I reaad this! I have a toe on my left foot..."
You might try a vibrating foot board. It could afford relief while reading and watching TV.
@luann262 I am hoping 3300 mg is a typo and it's supposed to be 300 mg?
Hi Luann...im glad I'm not finally losing it!!! I have thought of cutting my toes off many times!!! Never experienced pain like it. I have had neuropathy for many years but just numbness for years. Over the past several years pain and burning has entered the picture. I am taking Gabapentin 1800mg daily. Many years on tramadol,but my pain doctor has decided I need to come off of that. I have been weaning myself off and of course the neuropathy pain has increased greatly. I also take klonopin .5 mg Which I am also wanting to stop. I am trying many things. Right now have found a little relief with voltaren cream and cbd cream,on my toes and burning areas. Also using ibuprofen and Tylenol. The pain,has altered my life...not for the best to say the least. It is so difficult to know what to do. My neurologist want me to start Cymbalta ...my thoughts are why bother If It won't help me. I live in the flirida panhandle and have toyed with the idea of going to the mayo clinic in Jacksonville. Let's stay in touch ..it us so good to share information. Cathy
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Have you seen a physiatrist?