I’m Edith Ann and I don’t have to do anything if I don’t wanna…and that’s the truth…pfpfpfpf. You made me laugh right out loud this morning!! Welcome to Connect.

I’m so happy you found us and can feel the strength of this community of members. Most of us in this forum have gone through some life altering-life affirming event and know what it feels like to be vulnerable. Doctors and the teams at Mayo, while they truly set the gold standard for compassionate health care, are no substitute for someone who has actually “walked the walked’ of a certain disease or are the direct caregiver on a daily basis. That’s why I’ve found Connect to be the most amazing site filled with people from all over the world willing to help each other with moral support, comfort and hope.

It’s wonderful that you’ve been embraced by the Parkinson/LBD members. I’m not generally in that group but I do see the conversations. I’m so sorry that you and your husband are having to face these challenges. Some days must feel horribly overwhelming. We all mourn the changes from our youth as we get older but then adding the insult of a serious illness feels so unjust. This should be the reward, the magical times of our lives as we’ve lived through so much over the years.

Resilience! That’s another powerful word!! Look at everything around us…it is only the most resilient that persist. The ability to accept, adapt and move on is crucial to survival…that spirit of endurance! You have that within you, I can tell. I wish I could reach through the computer and give you hug. Your husband is a very lucky man to have you at his side.

And, Thank you! You’ve just inspired me this morning. Resilience is the perfect word I need for an art project with Asemic writing I’m working on this afternoon. It will be written a hundred times….

May I ask what little things bring you joy on a daily basis?