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Treatment options for Dysautonomia
Autoimmune Diseases | Last Active: Oct 3, 2022 | Replies (47)Comment receiving replies
As is typical with this diagnosis, she has only received symptomatic treatment. If her stomach hurts or she experiences cyclic vomiting, gastro rx zofran, reglan, etc. If she gets a migraine, then migraine meds. She actually works for Univ of Utah scheduling medical specialities. There is no coordinated treatment and a 3 year wait for Dysautonomia Clinic. Yet she continues to suffer
Replies to "As is typical with this diagnosis, she has only received symptomatic treatment. If her stomach hurts..."
@cdhouns I’m just checking to see how things are going for your daughter. She’s just too young to deal with all of these medical problems and children! Have you been able to contact a major medical center or Mayo Clinic?
@cdhouns I can't imagine the pain you are going though but I can empathize as i have the same issue with my autoimmune disease. My prayers are with you but unfortunately the healthcare system is what it is.
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I know you said there is a 3 yr wait, but i cant believe it!! Is she on the wait list? Have you considered going elsewhere? A large medical center or a university teaching hospital? If you think you might consider Mayo Clinic, here is the information for the campuses in Arizona, Florida, or Minnesota .
http://mayocl.in/1mtmR63
Is this something you and she might think about?