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Treatment options for Dysautonomia
Autoimmune Diseases | Last Active: Oct 3, 2022 | Replies (47)Comment receiving replies
Hello @cdhouns .. how difficult to have your daughter so ill, but i am glad you found Mayo Clinic Connect. We’re a group of patients and patient’s caregivers who try to help each other with resources, information, and tips we’ve learned from our own health journeys. But were not doctors so can’t diagnose or prescribe medications.
Here is a link to some information i found. Have you read this?
DINET Dysautonomia Information Network
Your daughter was diagnosed with dysautonomia in 2017—did any of the doctors start treatment?
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As is typical with this diagnosis, she has only received symptomatic treatment. If her stomach hurts or she experiences cyclic vomiting, gastro rx zofran, reglan, etc. If she gets a migraine, then migraine meds. She actually works for Univ of Utah scheduling medical specialities. There is no coordinated treatment and a 3 year wait for Dysautonomia Clinic. Yet she continues to suffer