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Any Optic Nerve Meningioma Patients Who've Had Surgery?

Brain Tumor | Last Active: May 13 6:52pm | Replies (110)

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@tlosborne

My wife just went through this type of surgery. Her surgery was this past Thursday 8/12/21. She has a very long scar starting at the front center of her left ear and following along the hair line to above the center of her right eyebrow; 22 staples. Breaks my heart to see her like this. Mild to strong headaches. To her credit she isn't taking the Oxycodone they prescribed, just Tylenol. She is tired all the time and hasn't regained her equilibrium yet. Her tumor is very large to quote the doctor but they only resected the area around the optic nerves. Her vision which was almost totally gone in her left eye has not improved yet but we are praying that out gracious Lord Jesus will do so. Just got the pathology report which said, no atypical features seen, which is very good news, praise God!

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Replies to "My wife just went through this type of surgery. Her surgery was this past Thursday 8/12/21...."

I am so sorry to hear your wife is going through this, @tiosborne. My scar location sounds the same, as well as my visual prognosis.

It took several months for my equilibrium to get to my new normal. I started with a walk on our uneven street that I increased, minimally, day by day. I had my hubby or daughter with me that first month to hang on to me.

My surgery was 11/18/20 and I did not start driving again until 4/21. I didn’t know until o got into my car and drove, that the one place I can see out of my left eye is my blind spot. It is a true miracle from God. I still don’t drive at night. And not on the freeway until this month. My radiation appts are downtown, so I have to.

On 7/13/21, the tumor board determined radiation was the best course. I started on 8/5/21, Monday through Friday and will continue until 9/17/21.

I hope and pray your wife’s team of doctors take care of her well. She sounds like a strong woman and God has the rest!