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maryft (@maryft)

PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Sep 14 1:58pm | Replies (405)

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Glad your taper has worked well for you so far. If you have trouble tapering from 10 mgs. be advised most recommend not tapering more than 10% at a time, so a 1 mg. reduction from 10. I, too, had little trouble getting to 10, but I've had plenty of trouble trying to get below 10. I continue to try and my next taper will be half a mg. to 9.5.

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Replies to "Glad your taper has worked well for you so far. If you have trouble tapering from..."

Thank you for the information. I'll keep that in mind. Good luck with your taper.

When you say trouble "tapering," do you mean the symptoms all return? I got down to 7mg, and, all of a sudden, I felt like I'd been hit by a truck. Contacted physician and was told to go back up to 10mg.

I was on 20mg for 2 months and because that was working pretty well, my rheumatologist had me taper to 15. After 3 days, the pain increased so she told me to up it to 17.5. I was on that for a little over 2 weeks and 2 days ago went back down to 15. Pain has increased, but I am going to try and stick with the 15 for a full week and see how I am doing. It is easy for me to overdo exercising so I am sticking with swimming and pool yoga before I make a decision to go back down to 15 to make sure I am not doing too much. Walking is good and I do 20-25 minutes of various stretching in the morning so I am able to stand straight and walk.