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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@avmcbellar

Hi @greenacres thank you for sharing. So sorry for your husband’s pain. There are different levels of neuropathy. The cold and hot pain is because of the damage to the nerve cells. We lack the sensors for detecting temperature. Without our sensors we give our brain the wrong signals for our bodies to adjust. I find in the mornings my hand feels cold. Overall in high humidity my symptoms are more intense. Unfortunately there is no cure. Supplements, diets, and exercise can help alleviate symptoms for some people. It all depends on the cause. I have tried some supplements people posted that were helpful. I have always eaten a well balanced diet. No supplements helped me. I decided for me it is best to get my nutrients through the foods I consume. I have never had a health issue until my neuropathy was developed(4 years ago) in error after the
last surgical repair of my AVM(ArterioVenousMalformation). Thanks you for the suggestion. I am glad to see your husband found some relief. A low carbohydrate diet and exercise seems to help me. There is no “magic pill”. I chose not to get additional health problems through the side effects of medications. Who needs that? Instead, I have learned to help myself through trial and error which I know takes more effort but in the long run I believe it will be better for me. Wish your husband the best. I will be happy to answer any questions.

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Replies to "Hi @greenacres thank you for sharing. So sorry for your husband’s pain. There are different levels..."

Hi @avmcbellar Thank you for your informative post about the damaged nerve cells unable to detect temperatures and how you're managing dealing with this. I'm sorry to hear about your AVM surgery causing your neuropathy. A well balanced diet and getting the nutrients needed from food is clearly ideal. Exercise is number one on the list in our home and a low carbohydrate diet certainly makes sense. We eat very healthy, lots of vegetables but cutting down on bread is an area that can be improved upon.
The medications definitely bring along side effects (brain fog and loss of coordination to a small degree) but after having trying to go without them the pain was to much.
We're both hoping that the supplements might just help alleviate the symptoms enough so that it might be possible to quit taking the meds. Thanks again for sharing.