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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)Comment receiving replies
@avmcbellar Hello. @resage This is an interesting phenomenon with the hot and cold. (My husband had the sudden onset of idiopathic peripheral neuropathy which early on appeared as a piece of glass in the foot, then thought it was a broken bone. only a few months later to get the diagnosis of PN and has had this for 3 years and while very painful fortunately seems to be have remained in the feet.) I'm not sure if he experiences cold in the winter but I do know that heat (heating pad, hot tub, etc.) aggravates the situation. I have a friend with MS who has also told me that heat aggravates that neurological condition as well.
He just started recently taking R-Alpha Lipoic Acid at lower doses. I believe there's been studies where higher doses (at least 600mg/day) helped relieve neuropathic pain and @lorirenee1 has had good luck with taking Benfotiamine which is a form of B1.
Have either of you been down that road with supplements?
Replies to "@avmcbellar Hello. @resage This is an interesting phenomenon with the hot and cold. (My husband had..."
Hi @greenacres thank you for sharing. So sorry for your husband’s pain. There are different levels of neuropathy. The cold and hot pain is because of the damage to the nerve cells. We lack the sensors for detecting temperature. Without our sensors we give our brain the wrong signals for our bodies to adjust. I find in the mornings my hand feels cold. Overall in high humidity my symptoms are more intense. Unfortunately there is no cure. Supplements, diets, and exercise can help alleviate symptoms for some people. It all depends on the cause. I have tried some supplements people posted that were helpful. I have always eaten a well balanced diet. No supplements helped me. I decided for me it is best to get my nutrients through the foods I consume. I have never had a health issue until my neuropathy was developed(4 years ago) in error after the
last surgical repair of my AVM(ArterioVenousMalformation). Thanks you for the suggestion. I am glad to see your husband found some relief. A low carbohydrate diet and exercise seems to help me. There is no “magic pill”. I chose not to get additional health problems through the side effects of medications. Who needs that? Instead, I have learned to help myself through trial and error which I know takes more effort but in the long run I believe it will be better for me. Wish your husband the best. I will be happy to answer any questions.
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My condition only started this past May, two months after my second Moderna shot. I am 75 and never experienced this before. I take 900ng of gabapentin daily and the only supplement I've tried so far is a nerve vitamin combination called N3 which was recommended by a podiatrist which I take daily; however I have no idea if it helps or not since my burning or ice cold symptoms seem to be either ok or terrible based on the day and I just can't seem to figure out why, if it's random, weather, stress, etc. Very frustrating. And it's mostly at night when lying down so sometimes I go to sleep sitting up in a sofa chair with my legs and feet straight down. When I finally fall asleep I don't feel the symptoms even though they exist, usually 2 or 3 AM.