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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@kzee64

Hello, I'm new. I was diagnosed with small fiber neuropathy and Autonomic Dysfunction in 2015. I'm 68 years old.
I received my first dose of Moderna 3/2021. I was fine that night. When I woke up in the morning I realized my neuropathy and autonomic issues were off the charts! I suffered terribly for three and a half days. I've never ever felt this bad. It took over 3 weeks before I was back to my normal where I was before I got my shot. I had "Covid arm", 8 days after my shot.
I emailed the hospital that I got my Moderna shot from. A doctor called me 3 days later. He said I had two options; One don't get the second dose, or two stay with someone if I did get the second shot. I've been watching the developments and understand the second Moderna dose side effects are usually worse. I did report my symptoms to VAERS.
I've held off on second dose until recently. Now with the Delta variant running rampant, in spite of the side effects I've decided to get a second dose. I plan to stay with a family member after I get my shot this week until I'm able to be back home by myself. Hoping for a good outcome, glad I will be fully vaccinated, and no matter what I will continue to wear a mask in public.

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Replies to "Hello, I'm new. I was diagnosed with small fiber neuropathy and Autonomic Dysfunction in 2015. I'm..."

Hello @kzee64, Welcome to Connect. I'm sorry to hear that you had such a bad reaction from your first Moderna vaccine but it is really good news that you are back to your normal with you 2015 diagnosis of small fiber neuropathy and autonomic dysfunction. It's also good to hear after reporting the symptoms from the first shot that the doctor called you back and you reported your symptoms to VAERS.

Now that you have made a decision to stay with family after your second Moderna shot, can you let us know if you have the same or similar symptoms after you receive the second shot?