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Treatment options for Dysautonomia

Autoimmune Diseases | Last Active: Oct 3, 2022 | Replies (47)
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@cdhouns

My daughter is 36 years old, a single mom with 3 kids, who has been presenting with symptoms of Dysautonomia since 2017. Each doctor she sees send her to someone else, or give her another pill to take. Cyclic vomiting, Barrett's esophagus, chronic diarrhea, etc, etc, etc, along with horrible migraines, stomach pain, and fatigue. She works for the University of Utah where she has been on the waiting list for the Dysautonomia Clinic for 3 years. Where do we begin to get her help??

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Becky, Volunteer Mentor | @becsbuddy | Aug 18, 2021

Hello @cdhouns .. how difficult to have your daughter so ill, but i am glad you found Mayo Clinic Connect. We’re a group of patients and patient’s caregivers who try to help each other with resources, information, and tips we’ve learned from our own health journeys. But were not doctors so can’t diagnose or prescribe medications.
Here is a link to some information i found. Have you read this?

DINET Dysautonomia Information Network

Your daughter was diagnosed with dysautonomia in 2017—did any of the doctors start treatment?

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