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Mouth irritation and sensitivity with autoimmune diseases
Autoimmune Diseases | Last Active: Aug 23, 2021 | Replies (39)Comment receiving replies
@ktgirl, @kenyalama. Have you been checked out for oral lichen planus? A dermatologist or dentist is your best bet to get a diagnosis for that. I was diagnosed last December., 2020, and have been battling it ever since. It's an autoimmune disease involving painful lesions on tongue and inner lips. It's not contagious, which is a blessing. I've had 5 or 6 doctors prescribe all manner of medications until I attended at a dermatologist's office. He said Clobetasol was his first line of defence, and advised me to apply it sparingly to lesions four times a day. When that was ineffective, he upped it to six times a day, with no positive result. Finally, he prescribed using Protopic (tacrolimus ointment 0.1%) sparingly on the lesions four times a day, as well as strongly advising me to carefully watch my diet for triggers. No citrus fruit or juices, no raw vegetables, no sweets, no crackers or similar foods that can hurt your mouth. I also cut out gluten and lactose at that time, to help my IBS (another autoimmune). I have Giant Cell Arteritis ( yep, another autoimmune), as well as several other autoimmune varieties.
And glory be, I'm finally pain-free from the oral lichen planus and the lesions are slowly going away! I'm still very careful to follow my diet restrictions so as not to trigger things, but that's a small tradeoff to be pain-free at last. I use White Petroleum Jelly USP Ointment for my dry lips. Good luck in your quest for a solution. Hope this helps.
Laurie
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@artist01 @ktgirl @kenyalama Mouth sores are just awful. I swear they set the tone for the rest of the body. Laurie, your thoughts on Oral Lichen Planus is really interesting and very well could be the culprit for kt and kenya. Thank you for sharing your story and hopefully this puts them on the path to another avenue of treatment and healing!
I was just going to toss in that during all my chemo and hoopla with the transplant, my mouth underwent extreme changes but it was brought on by medications so it’s back to normal now. Though I do have times of irritation from acidic foods or too salty items such as potato chips.
What got me through some of my worst times, and now I use it because it’s soothing…Spry Xlear mouth rinse. It’s non alcoholic and contains xylitol which helps to naturally heal and calm the tissue. It’s not a cure all but it is very gentle. When I was going through my treatments it was approved for use by my Mayo Clinic pharmacist so I feel comfortable in sharing the name of it here.
@kenyalama I share your misery with dry eyes. You might like to try another product by Systane. It’s Systane Nightime lubricant. It comes in a little tube and you apply about 1/4 of an inch in the bottom lid of each eye before bed. Your sight gets blurry so just turn off the light and go to sleep. But wow, that’s been a huge life saver. It needs to be done nightly for the best outcome. I used it sporadically at first and felt no change. But once I started applying it on a regular basis i find I don’t even need drops during the day anymore.