@greenacres Hi again, I buy Bestvite Benfotiamine 300mg. on Amazon. I take 2 pills a day, for a total of 600mg. Occasionally, I take 900 mgs., or 3 pills. Within about 2 days of taking it, my pain totally changed, and got way better. It's like a miracle. I had breast cancer 3 years ago, and was left with terrible foot neuropathy. What I think happened to me, after extensive reading about Benfotiamine, is that my breast tumor lowered my thiamine levels, causing neuropathy. It is the only thing that makes sense, as I have had every test imaginable to figure out what caused it, and only taking Benfotiamine lowered my pain. It just makes me think that I must have been low in thiamine, as tumors can lower thiamine levels. I suggest that you do give it a try. No harm in it. Also, I take Alpha Lipoic Acid in the form on NA R-Alpha Lipoic Acid from the company Immunovites, also bought on Amazon. The pills are 600 mg., and I take 2 a day. It is not as clear to me whether this lowered my pain, because I was already in significantly lower pain from the Benfotiamine. But there is such good research on NA R-Alpha Lipoic Acid, that I thought it could not form. You must take this form for the Alpha Lipoic Acid to be best absorbed. Anyway, I never imagined that I would be doing better, but I am. I would suggest to start with the Benfotiamine, for at least a month, and then add the NA R-Alpha Lipoic Acid. Take one at a time to start, so you can see more clearly what it does. I hope that you get some relief. Living with this illness is intensely hard, when it is not controlled. My best to you, LoriRenee1
@lorirenee1 Hi. You're terrific. This information is incredibly helpful and it's encouraging to hear that you got some relief. I'm happy to know that you survived your breast cancer. Both my sisters are also breast cancer survivors. My husband just started on the R-Alpha Lipoic Acid made by Pure formulas but is only starting with 200mg a day and apparently the lowest dosage used in the study to help with pain was 600mg/day. He plans on increasing the dosage slowly. The supplements that I purchased only come in 100mg capsules so next time I'll look into purchasing the Immunovites. I'll take your advice and have him start the Benfotiamine at a different time so he can be more aware of how he's reacting to them and since he's already started with the R-ALA.
Thank you again for providing so much feedback with the different things that you've tried from the Scrambler to the supplements and more. Living in pain is indeed challenging and I wish you continued success with controlling your pain.
One last note, the past week I've been using the Penetrex on my husband on one foot and the Topricin on the other, in the morning and at night, to see if there's a difference in the creams, and both creams provide temporary relief of bringing the discomfort down a couple of notches.
Kindest regards, Michelle