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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 14 hours ago | Replies (6007)
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@alicealna

Hello, and I’m so glad to find this group.
My neuropathy is not diabetes related. I’m 69, generally healthy, but with severe arthritis in
neck and lower spine.
The neuropathic symptoms in my lower left leg have grown more pronounced and more constant in recent months. It’s silently driving me nuts! Not sure whether to be concerned or not, or how much.
Have just completed a course of Medrol (first time in two years) so pain is not currently an issue. It’s just a constant mental preoccupation — I find I can’t successfully ignore it, and the distraction’s getting to me.
Would love to know how others deal with this side of the condition.
THANKS,
Alice in Maine

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Replies to "Hello, and I’m so glad to find this group. My neuropathy is not diabetes related. I’m..."
John, Volunteer Mentor | @johnbishop | Aug 16, 2021

Hello Alice @alicealna. Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. The Foundation for Peripheral Neuropathy has some good information on lifestyle type changes and alternative treatments that you might find helpful - https://www.foundationforpn.org/

Do you think your neuropathy might be related to severe arthritis in your neck and lower spine?

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greenacres | @greenacres | Aug 18, 2021

Hello @alicealna I've joined but my husband is the one who has the idiopathic peripheral neuropathy. He is also in his 60s healthy and in good physical shape other than dealing with this pain which he thinks could be related to a ruptured disk in the lower lumbar however since it presents itself bilaterally the doctors don't think so. He has been getting acupuncture the past year and a half (went through several before finding the right one) and while he still gets terrible pain so far it hasn't seemed to get worst. Also takes Gabapentin and a very small dose of doxipene at night and lots of supplements.

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jenatsky | @jenatsky | Aug 24, 2021

I recommend you try cannabis THC and/or CBD or both combined. I have a similar situation as yours due to spinal stenosis and OA having has lumbar fusion in the early 90's. I'm as active as I can be walking minimum 2 miles daily. Cannabis takes your mind off the pain and allows you to function and do your ADL's.

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