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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@sio

Hello. This is all new to me. Sudden shock! Was healthy …working out every day…running…capable of doing anything. And then…this hit . Does it ever go away? Can life be normal again? Thoughts from anyone?

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Replies to "Hello. This is all new to me. Sudden shock! Was healthy …working out every day…running…capable of..."
John, Volunteer Mentor | @johnbishop | Aug 17, 2021

Hello @sio, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I'm sorry to hear you are struggling with the pain of PMR. Your second post mentioned that you just started taking CBD to see if it will help with the pain.

Are you able to share a little more information on your diagnosis and if you were started on prednisone to treat the PMR?

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floridabonnie | @floridabonnie | Aug 23, 2021

Hi I was diagnosed in April of this year! I was like you, going to the gym, walking 3 miles a day and taking care of an active day 4 year old. Then one day, it hurt me to even stand up! Talk about surprise! I started out at 15 mg of prednisone a day, and have cut back to 9. Having trouble sleeping, and hungry most of the time. But I can walk and use my arms again and the pain is gone. Don’t know how long this will last, or if it will ever go away. I want my life back! This site does answer a lot of questions.

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