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maryft (@maryft)

PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Sep 14 1:58pm | Replies (405)

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@maryft, It can definitely be confusing and you have asked some really good questions. I think you will probably get the best answer from your rheumatologist. I had some of the same questions my first time around with PMR and my rheumatologist gave me some valuable insight when I was 3 years into PMR and having trouble tapering off of 1 mg prednisone. He told me about a younger professional athlete he had for a patient that spent 1 year trying to taper off of prednisone and suggested I try what he did – split my 1 mg tablet in half to taper down to 1/2 g. I did that and went back and forth between 1 and 1/2 mg doses until I was finally able to taper off with only a minor ache in the mornings. Sometimes our bodies don't give us the choice of being on prednisone long term. You are right about the varied dosages and time frames. I think our individual pain thresholds and tolerances play a part in how soon we can get off of prednisone because we are all affected a little different. I'm hoping other folks with PMR experience can provide their thoughts and suggestions also.

Are you able to discuss your concerns with your doctor or rheumatologist?

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Replies to "@maryft, It can definitely be confusing and you have asked some really good questions. I think..."

Unfortunately, my doctor is retiring in 2 weeks, so I have to start over with someone new. I think I may just ask for a referral to a rheumatologist. Thank you so much for your information and insight. I truly appreciate it!

Hello and thank you for your information! I go to see my rheumatologist this Wednesday, September 28 and discuss the next process. I’m currently on 1 mg of prednisone but starting to get some of my relapse symptoms of PMR back not too bad but is a bit concerning. I will follow everybody’s postings

My doctor and my rheumatologist unfortunately disagree with both the diagnosis and the treatment. I am now on Advil Joint and Muscle 400g (my own treatment decision/choice!) and I only have to take one every 48 to 72 hours to manage the pain and stiffness. However, I now worry about the impact of the Advil over the long term. Thoughts?