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Stage 3 chronic kidney disease (CKD): What specialists do I see?
Kidney & Bladder | Last Active: May 19, 2022 | Replies (237)Comment receiving replies
Hello Ginger,I was dx with minimal change disease. My last eGFR was 54. It has been gradually decreasing I asked my dr to explain this. He told me not to pay any attention to the lab value because my eGFR will fluctuate. That was in March and no other labs have been ordered since that date. Should I be concerned
Replies to "Hello Ginger,I was dx with minimal change disease. My last eGFR was 54. It has been..."
I have been diagnosed with NS MCD and I pay close attention to my GFR despite my renal disease mainly involving protein loss. My GFR was low on initial diagnosis, but I was very sick. Since then, fortunately, it has “fluctuated,” but not been below 70. I would definitely suggest you be under the care of a nephrologist who follows your condition closely and expects your concerns. Did you have a renal biopsy for your MCD diagnosis?
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@jessetee It is not our policy to offer medical advice here on Mayo Clinic Connect. What I have is printouts from all my labtests, and I created a spreadsheet showing the results. This way I can see the trends that may happen. When doing labtests, I generally use the same clinic, so the same machines, etc. Your results may vary if you are dehydrated, or the time of day, etc.
If you are not seeing a nephrologist , I would recommend it. They are a specialty that oversees kidneys and kidney disease. Many times a general doctor, or nurse practitioner, does not have that "extra" training to be well-versed in kidney disorders. Both my oncologist and nephrologist keep close tabs on my kidney function, with labs every month due to chemotherapy and low eGFR.
Ginger