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Does anyone have experience with Palliative Care?

Chronic Pain | Last Active: Jul 29 9:27am | Replies (154)

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@deek15redpeppers

Ginger, Yes, you are correct. Palliative Care has helped me too. They have so many resources to offer both of us. I think my spouse and I are drawing closer, but there are still difficult days, that's for sure. This week has been good though, with a drive to see a friend, another friend visiting and just a trip to the grocery store, slow motion with her on an electric cart. I bit my tongue several times to stop myself from saying "can't we go a little faster"?

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Replies to "Ginger, Yes, you are correct. Palliative Care has helped me too. They have so many resources..."

Ah, the urge to "get it done". I had an "aha" moment once with my Mom in the grocery store - to her it was an outing, to me it was an errand.

It was a matter of perspective. I decided to make it an outing for myself too. I watched people. I looked at products on the tops shelves in each aisle - you know, the odd stuff like specialty condiments, artichoke hearts and imported cookies.

Interestingly, I came out of the store relaxed, not impatient like I usually was at the end of one of our grocery trips. By that time in her life, enticing her to eat was not easy. So the next time we went to a local specialty grocery and made it an adventure. Sure, the staple items cost a bit more, but we found a few things she would eat, and we enjoyed the journey.

Caregiving changed my perception of many aspects of life. Did you know a McDonalds' Filet'o'Fish sandwich could be a treat if you weren't able to drive up and get one whenever you wanted it?

Sue