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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)

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@johnbishop

Hello @cranea14, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I'm sorry to hear that your doctors do not seem to be listening to you. It can seem like you are going in circles when the treatment doesn't seem to be helping.

Sometimes I think it helps to have a plan when you talk with your doctor so that you are prepared and have questions written down that you would like to get answered. There is a website that will help you plan your conversation with your doctor at your next appointment - https://patientrevolution.org/visit-tools

Another thing that will help you personally is to learn as much as you can about your diagnosis and options that are available to you. Here are 2 sites that could be helpful to learn more about your condition.
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

Have you been diagnosed with diabetes as well neuropathy?

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Replies to "Hello @cranea14, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

HI
I was diagnosed with neuropathy after having the EMG done. When my hands became neuropathy then the neurologist have the glucose test was done that showed diabetes but if you are asking by doing the home glucose test no my numbers were normal.

Thank you, for the information I read everything before coming here since there wasn't any other place here where I live , Just want answers and some place to talk about what can be used for pain

Thank you

Angel