← Return to Member Neuropathy Journey Stories: What's Yours?

Discussion

Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)
Comment receiving replies
@cranea14

Hi
In the last 3 years I was finally diagnose with polyneuropathy in my legs but I know that I had something wrong year way before now.in my leg. The Doctor who did the test EMG/NVC that abnormal and there was nothing that he could do. Went to my regular doctor to talk about options. They tried many different medicine even since me to other Neurologist especially when both my hands became tingle, pain and burning feeling. She did a pile of tests and she came up with the same thing that I have diabetes. The only time that is shown up is when I have the glucose test. I have been on Gabapentin for the last year now. But it seem that it not helping the amount of 600 mg 3 times a day. My doctor put me on metformin and then on Victoza early this year. Why do they send you in circles and don't want to listen. It's hard to do normal things.

Jump to this post

Replies to "Hi In the last 3 years I was finally diagnose with polyneuropathy in my legs but..."
John, Volunteer Mentor | @johnbishop | Aug 13, 2021

Hello @cranea14, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I'm sorry to hear that your doctors do not seem to be listening to you. It can seem like you are going in circles when the treatment doesn't seem to be helping.

Sometimes I think it helps to have a plan when you talk with your doctor so that you are prepared and have questions written down that you would like to get answered. There is a website that will help you plan your conversation with your doctor at your next appointment - https://patientrevolution.org/visit-tools

Another thing that will help you personally is to learn as much as you can about your diagnosis and options that are available to you. Here are 2 sites that could be helpful to learn more about your condition.
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

Have you been diagnosed with diabetes as well neuropathy?

VIEW AND REPLY