Hello Belinda @bct, Welcome to Connect. You will notice that we removed your telephone number in your reply to @suzieflynn. We did this to protect your privacy since Connect is a public forum and can be viewed by anyone on the Internet. Members can use the private message feature on Connect to exchange contact information securely. How to use the Send Private Message feature is found in the Get Started on Connect guide here: https://connect.mayoclinic.org/get-started-on-connect/#send-private-message

Do you mind sharing what questions you have about stiff person syndrome so that other members can share their experiences with you?