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Does anyone have experience with Palliative Care?

Chronic Pain | Last Active: Jul 29 9:27am | Replies (154)

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@candysmommy

Wish I could find that in my area,but without a cancer diagnosis I have not been able to find anyone to help me with it.

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Replies to "Wish I could find that in my area,but without a cancer diagnosis I have not been..."

@candysmommy, I wonder if this might help you find someone in your area - https://getpalliativecare.org/provider-directory/

That is so sad because many other issues besides cancer may benefit from palliative care. I hope the next comment will help you. Good luck.

Last spring I was in end stage liver disease. I was being processed to be on the transplant recipient list. But, knowing how slim it was for me to receive a liver, I was doing what I needed to do to prepare for my care and potential death. My liver doctor referred me to palliative care.

It was during Covid, so my consultations with them were virtual. But I was able to see a doctor for pain management meds and medical cannabis. I also spoke with social workers who provided great financial guidance. And, of course, a counselor who was wonderfully supportive.

You should be able to be referred by your provider to a palliative care practitioner. And, if there is not one in your area, there should be a regional opportunity. I live in southern Vermont and received my care from a medical center in New Hampshire.

The organization that John @johnbishop referenced is the national palliative care organization and they have numerous resources.

My best wishes for you.