← Return to Inclusion Body Myositis: I'd like to talk with others

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@tarmansbks

Don't know if it is fair I chip in on this because I don't have the condition but I had a dear friend who lived with IBM for 30 years. She was active for 95% of the time until the end due to pneumonia during covid. She was able to travel, host friends and family, and was ambulatory and self-reliant for the most part with help of her lifetime husband.. Her greatest relief came from going to an indoor pool where there was a chair lift to lower her into the water. She was eventually diagnosed by doctors at Johns Hopkins after years of searching for answers. She visited there for many years getting treatments particularly to help a painful knee. In later years, she transferred care to Hershey Medical Center which was 8 miles away. All in all, I had the deepest respect for this intelligent and stalwart woman who faced her diagnosis with courage and resolve not to let it inhibit living life to the fullest. I wish everyone experiencing IBM the same.

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Replies to "Don't know if it is fair I chip in on this because I don't have the..."

Thank you tarmansbks for your post. Hearing about your friend gives me encouragement to keep going.