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@johnbishop

Hi Tracy, You mentioned you think it may have started as a mosquito borne illness. I was wondering if you have done any research or comparison of your symptoms with any of the known types of mosquito caused diseases. I know there are a lot of them just by doing a little searching so I'm guessing you've been down that road before.

-- Mosquito-borne diseases | World Mosquito Program: https://www.worldmosquitoprogram.org/en/learn/mosquito-borne-diseases
-- Mosquito-Borne Diseases | NIOSH | CDC: https://www.cdc.gov/niosh/topics/outdoor/mosquito-borne/default.html
-- Chikungunya Virus: https://www.cdc.gov/chikungunya/index.html

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Replies to "Hi Tracy, You mentioned you think it may have started as a mosquito borne illness. I..."

Thank you for the resources John! This is the first rabbit hole I went down with the onset of this illness. I did end up getting tested (12+ months later) for Chikungunya AB IGG/IGM, Dengue Fever IGG AB, Zika Virus RNA by PCR, West Nile IGG/IGM AB, Arbovirus California, Arbovirus Eastern Equine, Arbovirus Western Equine, and even had a special lab look for the newly recognized Mayaro virus. All of these came back negative. I also had several negative Malaria smears and antigen testing.
It is possible it was one of these but was negative due to the time that passed but as ID at Hopkins said, these are just the few mosquito borne viruses we have western names and serology for out of the countless ones that exist. She seemed to think it was slightly more likely it was Malaria I may have gotten two years prior when I was living in India resurfacing than a virus. She said my recurring symptoms, and inability to pinpoint the initial infection were common for her to see as peoples "end of the line" ID specialist. She said whatever the infection was, she believes it is gone and this is now immune mediated and my 'new normal'. I do still really want to know what caused this though. Thanks again John!