Hi,
I just created an account so I could respond to you- I know this is old but hope you see this! I could have written your post and would love to connect.
I developed a length dependent SFPN following a recurring unknown viral illness in the tropics. I was seen at many hospitals including Johns Hopkins and eventually at Mayo Clinic.
The specialists also believe mine is an immune response similar to Guillan barre syndrome. I have never met anyone else with this diagnosis and after years of searching for answers would love to connect.
Peace,
Tracy