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@ess77

@change25, @becsbuddy and others...

My son is better. Thank you for asking. He was quite ill, his heart wouldn't settle down and he was having tough reaction to med withdrawal. He was throwing up for several days, out of control. With throwing up so often, he wasn't able to keep his med levels steady, so blood pressure, pain, all the meds weren't in his system doing their jobs.

He's 52 years old, disabled since he was 35 w/dystonia, a movement disorder, rare and difficult to diagnose and treat. He's in severe shoulder/arm/head nerve pain, lost the use of his left arm, has dilaudud pump and gets regular botox shots from specialist at Mayo. Now, he gets regular massage therapy at Mayo. Hope to get additional help to stabilize his life, to give more independence especially since I have these new difficult dx. I must back out of taking care of his meds, setting up pills, ordering groceries, driving, overseeing his scheduling, etc.

So, you see? You are quite blessed to have your life and independence.And, you are well on your way to getting help and answers. Keep up your good, hard work for yourself.

Bless you and keep up the good work!
Elizabeth

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Replies to "@change25, @becsbuddy and others... My son is better. Thank you for asking. He was quite ill,..."

You're right, perspective is so important and your often blinded in the moment until you realise that there are things to be grateful for. Even though you're suffering the ordeals others are facing are far greater.

I'm glad you have one another, you are both very strong and brave. I hope you both continue to see improvements in your health and you never know with how science is progressing a cure may not be far away.