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Living with Prostate Cancer: Meet others & introduce yourself

Prostate Cancer | Last Active: Sep 10 6:24pm | Replies (648)
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@joenfl2017

Diagnosed in 2018 with grade 2b. I’ve seen several urologists at Mayo in Jacksonville who were great doctors. I have had the HOLEP procedure for BPH which helped me immensely. I recently had another MRI to determine the next move as far as treatment. PSA is 13.5 as of yesterday. I will have a consultation tomorrow. Since my prostate is smaller now, the urologist I’m seeing now suggests having HIFU when the time comes for treatment. I’m totally against any radiation treatment. Anybody out there ever had HIFU treatment and if so, what facility did you use?

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Replies to "Diagnosed in 2018 with grade 2b. I’ve seen several urologists at Mayo in Jacksonville who were..."
Colleen Young, Connect Director | @colleenyoung | Aug 12, 2021

Hi Joen,
@semeon @poodledoc can share more about high-intensity focused ultrasound (HIFU) and their experiences.

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poodledoc | @poodledoc | Aug 13, 2021

Hello @joenfl2017 In my opinion if a Mayo doctor says you are a good candidate for prostate HIFU then that is what you should consider. Mayo in Jacksonville also has recently started doing the newest version of HIFU called TULSA PRO. I had prostate HIFU performed by Dr Scionti in Sarasota FL November 2020 and am very pleased with the results, low PSA and most importantly a total lack of any side effects which are so common with surgery and radiation. Good luck to you. Bill

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jfgunion | @jfgunion | Jul 7, 2022

I am hoping to get an assessment by Stanford medical center in the next few weeks. They do HIFU. Anyone have experience with Stanford? Sperlman is probably good, but far away for me. Thanks for any input.

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