← Return to Immunosuppression: Watching For and Managing Side Effects

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@contentandwell

@stan1357 Have you checked all of the websites that list side effects? Some don't list rare side effects. My immunosuppressant, sirolimus, seems to be causing one of the rare side effects - joint and muscle pain. I'm not entirely sure of that yet, I have three medications that can cause that, and I have managed to eliminate one from being the culprit and am in the process of eliminating another. I can't eliminate sirolimus so I just have to do it by process of elimination - the other two can be eliminated for brief periods.

I mentioned a while back in this stream that the immunosuppressants had caused lactose intolerance. That lasted for quite a few months but thankfully has gone away! I can now eat foods with lactose with no negative effects. I think when people have diarrhea from immunosuppressants that's the first thing they should look at, the possibility that it is lactose intolerance.
JK

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Replies to "@stan1357 Have you checked all of the websites that list side effects? Some don't list rare..."

Hi, its not mentioned in any side effects but I did find a blog where someone mentioned it was a "kind of fluidly fat deposit" due to prednisone and something to do with the effect on cortisol but did not elaborate. It is very soft and feels like it could be fluid or fat. I was wondering if it was osteoporosis or spngio related. I don't have any facial dwellings or Mongol changes you get with high dose steroids

I think prednisone causes joint pain and weakness, also osteoporosis