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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
Oh no, that's awful. Must've been a terrifying time, not to mention the stress of your son being unwell also. Like you say it was the perfect place to be where they've picked it up and hopefully you're feeling much better now. If you don't mind me asking how's your son doing?
Yeah, I'm just concerned with what's been going on that my body may react to it... though if it's needed I suppose it's worth the risk. I've still not had my covid vaccine as my Dr wants me to wait until my MRI scan.
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@change25, @becsbuddy and others...
My son is better. Thank you for asking. He was quite ill, his heart wouldn't settle down and he was having tough reaction to med withdrawal. He was throwing up for several days, out of control. With throwing up so often, he wasn't able to keep his med levels steady, so blood pressure, pain, all the meds weren't in his system doing their jobs.
He's 52 years old, disabled since he was 35 w/dystonia, a movement disorder, rare and difficult to diagnose and treat. He's in severe shoulder/arm/head nerve pain, lost the use of his left arm, has dilaudud pump and gets regular botox shots from specialist at Mayo. Now, he gets regular massage therapy at Mayo. Hope to get additional help to stabilize his life, to give more independence especially since I have these new difficult dx. I must back out of taking care of his meds, setting up pills, ordering groceries, driving, overseeing his scheduling, etc.
So, you see? You are quite blessed to have your life and independence.And, you are well on your way to getting help and answers. Keep up your good, hard work for yourself.
Bless you and keep up the good work!
Elizabeth