← Return to Just diagnosed Stage 3 CKD: Should I be referred to a nephrologist?

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@littlebittexas

Hey guys, I am new to the group. I like reading about all of your options,advice, and experiences. I have had right kidney issues for a long time such as stones and kidney infections. Also nagging pain in the area. A trip to the ER last year for an unrelated issue revealed a 8mm ( if I’m remembering correctly) cyst on they same kidney. Over the past 10 years I have had issues with funny smelling urine, foamy urine, and random cloudy urine. Swelling a few times in my ankles. I have never had uncontrolled high blood pressure or diabetes. I do have pain constantly in the right kidney area mostly if I bend a certain way. I do have arthritis ( psoriatic) I have been on meloxicam for years. Recently quit taking it and started methotrexate. I also wake up most nights thirsty and very dry mouthed this also has happened in the day. It’s like all of the water just leaves my mouth. No saliva at all. I drink so much water every day and it is very rare that I let myself get dehydrated in anyway so none of the issues above should happen. I recently have told my primary doc that if I have to hold my urine I tend to also get nauseous. He says it is unrelated. Now my creatinine has been slightly elevated for probably 7 hrs. but I didn’t worry because the doctor was not worried. However, now my creatinine is creeping up and I am worried. I’m worried my doctor is not as familiar with kidney issues as he should be. He think I do not need to see a nephrologist just. Oh my goodness! When should I , after I am in complete failure and past the point of no return? Also why is it that none of my doctors have run a UA? I hope this isn’t too long and drawn out. Thank you in advance.

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Replies to "Hey guys, I am new to the group. I like reading about all of your options,advice,..."

@littlebittexas [cool screen name!] Welcome to Mayo Clinic Connect. We are fellow patients who share our stories and experiences here, and help others on their own health journeys.

I am also a kidney disease patient, stage 4. Kidney disease can be a "quiet predator", in that many times it progresses slowly. You don't realize that there is an issue until later. Unfortunately, the majority of general practitioners do not have a great knowledge in kidney issues. If your primary dr will not refer you to a nephrologist, call your insurance and ask about self-referral. It is certainly better to pursue a specialist's opinion now.

In my experience, I had a wonderful general dr who sent me to an equally wonderful nephrologist, back in 2014. It has been quite the journey! There are many causes to kidney disease, including family history, high blood pressure, diabetes, lifestyle choices, certain medications, or like mine, a weird autoimmune disorder.

Please let me know what you decide to do, and if I can be of any help to pursue your decision! Will you do that?
Ginger