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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@amyd67

Finally was able to see a neurologist yesterday for my neuropathy. Was a short appointment. He listened to my symptoms and concerns. Would not in any way confirm or suggest that this was, or even maybe was, a reaction to the vaccine or having Covid. He says neuropathy can start at any time and I can’t try to pinpoint why? I’m not swayed or convinced otherwise . I’m 53, very healthy with no underlying health issues or trauma. This all started within a week of 2nd vaccine injection. All blood work is normal. Anyway….. the old standby, take more gabapentin, have an EMG nerve study to make sure it is indeed neuropathy….. he also said very unlikely that it will resolve or get better. I’ve decided to, for now, skip the nerve study and not put myself thru the pain and anxiety and expense, as it sounds like treatment plan won’t change. I’m not in a lot of pain, and most of burning is at night. I purchased CBD from a CBD store, came in a roll on liquid mixed with different oils. It’s very cooling upon application. Seems to relieve the burning enough for me to fall asleep, so I’ll stick with that until it no longer works. I’m lucky my husband is an MD, and very much into holistic and natural remedies. I also have a brother who is a PT and has given me lots of advice. Says to not give up yet, that nerves can heal, it’s just a very slow process, stay active. I have started to exercise in my pool and do find relief in this . Again, not in a lot of pain, just more of being irritated. Lucky I guess. I am very pro vaccine, but I don’t think I will be getting a booster shot. Having Covid last winter was not pleasant, but this sucks too.

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Replies to "Finally was able to see a neurologist yesterday for my neuropathy. Was a short appointment. He..."

@amyd67, The Foundation for Peripheral Neuropathy lists some alternative treatments you might find helpful.
https://www.foundationforpn.org/living-well/integrative-therapies/

Have you tried a course of prednisone yet? Our symptoms sound so similar that I'm now wondering if we're both experiencing a blasted immune response that just needs to calm the frack down. I feel like the only thing that really helped was the prednisone; however, it could have been the slower working other stuff I've been taking all along.

I agree that this has been no walk in the park, but it hasn't hampered my ability to work, or been a severe illness of any sort. Just irritating which makes me irritable with everyone around me.

I've noticed that I opt to go through a drive through rather than walk into a store. So it's been small changes in my life, nothing earth shattering.

I did actually go to a plant nursery, plant some seedlings, and start some tomato plants last weekend. I also had my brother come over to assist with some two person chores recently, so I must be on the mend. I've let some things just slide in the past 6 months simply because I didn't want to be on my feet, even though not being on my feet did not improve anything. My "get up and go do" was just broken.

Hope you're doing well and hope to get an update from you soon.