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Bronchiectasis: Is nebulizing helpful?
MAC & Bronchiectasis | Last Active: Oct 21, 2021 | Replies (76)Comment receiving replies
Just curious, as a health care provider are you a physician? My general practitioner defers most of my questions/care/treatment to my pulmonologist. As an RN I knew nothing about MAC. Is that your case? None of my co-workers were familiar with it either. You are right, we are educating others!
Replies to "Just curious, as a health care provider are you a physician? My general practitioner defers most..."
I am: a surgeon in fact so @thumperguy has a long way to go before the narcicism can ruffle my feathers. Lol.
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@ge53 and @tampamac and other MAC/Bronch members - Our moderators recently asked what is the most gratifying thing about being a mentor.
I didn't even have to think very hard - it is how we, as a group with MAC & Bronchiectasis, both rare diseases, are able to learn from each other, resulting in better health and quality of life for many of us.
You are quite correct that even medical professionals are often totally unaware of what we have or how to treat us. It was from this group that I learned much about both these conditions and treatments. Advocating for myself using what I learned on Connect when speaking to my pulmonologist got me "fired" by him. He had 27 years of experience and proclaimed himself well-versed in treating MAC, but was outraged that I dared to suggest 7% saline and other strategies outside his normal protocol.
No worries though - I ended up with a great team of ID doc for the MAC & pulmo for my asthma - and have been off meds and on 7% saline for 20 months now! Have a followup at the end of the month, where I hope imaging will show no changes.
Thank you for being part of a great team.
Sue