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Seizures/how to dose CBD/medical marijuana

Epilepsy & Seizures | Last Active: Mar 22, 2023 | Replies (66)

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Hi Kerry!

Sure you can ask! I started having seizures when I was 12 years old (I am 50 now).

Possibly, my epilepsy is due to the intake of medications of my grandfather at his place when I was 5 years old, having had a convulsion and staying unconscious at the hospital for 7 days. Back home at that time, my mother visited more than one doctor. Everything seemed to be normal without consequences from this medical event. At the age of 12, I have started to have some strange experiences that lasted seconds, which today I know were seizures. I have repeated the EEG and the results were normal (today I know that a normal EEG does not rule out the possibility of epilepsy). Up to 2017, I have had a normal life with around 5 seizures a year, with no idea that I had epilepsy. But in 2018, after a stressful and very demanding 2017, things started to change with sleep disorders and an increase of those “strange experiences” (seizures). My epilepsy has evolved.

It makes sense to me to believe that there is a tie between gut health and some kinds of epilepsy. Otherwise, why does the ketogenic diet bring good results to some people with epilepsy? I believe my epilepsy is not linked to my gut health (but to the event at my grandfather’s house), even though I became quite sensible to fatty foods after I had hepatitis A at the age of 22 (intake of oysters). In your place, based on what you have shared here, I would investigate if there is any relation between your son’s GI issues and his seizures.

Kind Regards

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Replies to "@keeg1010 Hi Kerry! Sure you can ask! I started having seizures when I was 12 years..."

Hi there! Just so I am understanding you correctly, you had a convulsion at age 5 and then there were no other issues until age 12? The strange experiences (seizures)...can you describe them? I agree with you on the EEG's as well as other tests they have run on my son. They aren't really accurate unless you're having seizure activity. It's the same with when they initially had my son do a barium swallow to check for reflux. Well, unless he was having reflux during the test, it comes back normal. That's why we finally found a GI who would do an endoscope. I am very curious about the gut/seizure relation and will definitely look into that. I'd be interested to know what happened at age 5 that brought on the convulsion? How scary that you were unconscious for 7 days following that episode. When my son had his first seizure, they just diagnosed him with convulsions, unspecified. They only last 30-45 seconds for him (at least the 3 he's had) but they are so sudden and I am so concerned that if they continue to increase in frequency, he is in danger of hurting himself.

I agree with you with regards to the microbiome being involved. I have looked on the internet and they mentioned doing studies with the ketogenic diet and also probiotics. They mentioned 2 bacteria that are increased by the diet akkermansia muciiphila and parabacteroides. You need both together. The bacteria increase levels of GABA, a neurotransitter that silences neurons.
I have tried the ketogenic diet (Modified Atkins) in the past but had to give it up after a year due to acid reflux. I hoping someday they'll look into the probiotics approach more.