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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Cilia my appt period at NJH started at 7am on a Thursday in January....routine blood work....a 6 minute walk in respiratory therapy to see if I needed Oxygen while there...an aide came down from adult day unit where you will have a room/bed/ to rest in between appts. Most days end at 5pm.you order no cost from menus in room all 3 meals. There are nurses on floor for teaching and meds if they start you there.
So I had appts on Friday then weekend with nothing going on....then appts the next week....Monday thru Friday....except one item I had for Wednesday was cancelled soooooo had a day off.
I stayed in hotels with shuttles since I had no car....so I used the list from NJH re hotels giving rates. If you have a car, you will save money by not having shuttle,.....parking is free at NJH.
They spread the appt over several weeks so they can add tests and appts as needed.
I had had a lot of tests done prior to arrival and had all sent in advance to NJh....none the less lots were added.
What other questions do you have? Tdrell
Replies to "Cilia my appt period at NJH started at 7am on a Thursday in January....routine blood work....a..."
Tdrell, is there a shuttles from the airport to the hotel? My husband wants to rent a car but I thought if there is a shuttles from the hotel to the clinic we don't need to rent a car. Thanks for the information. Cila
@cila Cila,
when you call the hotels and car rental places, ask them if they give a NJH
discount to traveling patients. You might also ask NJH if they know of some that
do. Also, ask NJH if they have accomodations on their site (can probably find
that on their web site) I know that the Mayo Clinic in JAX has onsite
accomodations and area hotels give discounts if you ask. Please let us know what
you find out. Also, you may consider http://www.AirB&B.com you can rent a room,
apt, or house, cheaper than hotel rates. I have stayed in three AirB&B
places and had very good experiences. - Terri
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@tdrell Wow,
Terri, NJH is super thorough. I was going to go there in 2007 when I lived in
Az. My hubby talked me out of it because he did not realize the seriousness of
MAC at the time. I have since learned to listen to my gut feelings.