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Myasthenia Gravis and COVID

Autoimmune Diseases | Last Active: Oct 17, 2021 | Replies (34)

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@pmdwarrior

I began MG treatment with Mestinon (after my diagnosis) and after 18 months or so I just had to stop the meds as I saw really little improvement with my symptoms. Switched neuro docs to a "neuro muscle specialist". I have been on Cellcept for my MG and had IVIG infusions X2 every 4 weeks for 22 months. Symptoms of fatigue and muscle weakness/contractions in my legs was much improved. Stopped IVIG 5 months ago and continued to take Cellcept. However, 3 months ago my symptoms began creeping back. I am now restarting IVIG infusions this week along with continuing Cellcept. My Dr. has asked if I wanted to start another treatment regimen using Rituximab infusions instead. It was developed as a treatment for non-Hodgkin lymphoma but has been used successfully for auto immune diseases. My question is has anyone had this treatment for MG and if so, what was the result?

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Replies to "I began MG treatment with Mestinon (after my diagnosis) and after 18 months or so I..."

Hi PMDwarrior, welcome. Allow me to tag fellow members @skhollandmt @rambo77 @Erinmfs @ellen307 @pdietrich @lynnes @chorba @janyce who can share their treatment experiences with Myasthenia Gravis and Rituximab infusions.

You may also be interested in this related discussion:
- Myasthenia Gravis: Share your treatment journey https://connect.mayoclinic.org/discussion/hi-everyone-let-me-begin-by-telling-you-some-of-my-story/

When do you plan to start Rituximab?