Santosha,
I am so glad to hear that the CBD is working well for you. Can you explain what you mean when you say CBD leverages AEDs? I have not heard of Purodiol before. All of this CBD vs. THC for seizures is new to me. Since you tried both, which would you say had the best outcome? I see conflicting stories where some say CBD works best and others say THC is the way to go. I'm glad to hear that you are able to import the Purodiol to Brazil. I did request a referral to Mayo Clinic from my primary care doc but when I first tried to take my son there, the wait list was about 6 months. I did a little more digging on epileptologists...according to the profile of my son's neurologist, she is an epileptologist. I really like her but Mayo clinic has so many options on diagnosing where the seizures are coming from and several different treatments that are not available with my current neurologist. I live in Arizona. When I said "the card would do my son no good", I should have explained further. In Arizona, recreational marijuana use was recently approved. Now, anyone can go to a dispensary and get medical grade THC. Prior to that, the only way you could gain access to medical marijuana is through a doctor. There were certain qualifying conditions (such as seizures, chronic pain, migraines,etc). Once you saw the doctor, they would either approve you for medical marijuana or deny you. If approved, the information was sent to the state department and the state would issue you a medical marijuana approval card (kind of like a license) and then you could go to a dispensary. Without it, you would not be allowed in. But, that changed last year so everyone has access. The card wouldn't do my son any good because he is non-verbal and couldn't go to a dispensary and order anything. I know the dispensary's provide medical grade products but I don't know how pure they are compared to a prescription compound. I'm frustrated that my son's neurologist recommended CBD and THC but has no info on dosing.
Thank you again for sharing your experience with me. I just recently found this forum after I was frantically searching for help the day my son had his 3rd seizure and injured himself when he fell. Talking to people who can help guide us has been amazing and it's so inspiring to see the openness of everyone here.
Hope to talk again soon!
Kerry