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DiscussionLooking for any food links regarding Vasculitis - Wegeners disease
Autoimmune Diseases | Last Active: Feb 6, 2023 | Replies (34)Comment receiving replies
Replies to "Hi all I was diagnosed with MOA, P-anca two years ago. I have been on rite..."
@siosal How are you today? Did you get any information from the articles @gingerw posted? Colleen asked me to join the conversation. I don’t have ANCA but my sister does. She was diagnosed about 5 yrs ago and is doing very well. I think she had rituxan infusions. I have a different autoimmune disease, but i also had rituxan. It was given as 2 doses twice a year. Unfortunately for me, it quit working after the 3rd cycle. I then had 6 cycles of cyclophosphamide which put me into remission. Now the doctor is trying an oral drug that will keep me in remission.
If you are old enough to get the AARP magazine, there is a wonderful article about autoimmune diseases. I haven’t been able to access the article online so cant provide a link. I’ll keep trying.
I know you’ll be okay, just keep taking care of yourself (think Covid), and rest even when you don’t want to.
Hi @siosal, I can imagine that the diagnosis of MPO ANCA vasculitis is scary. I'm tagging other members who live with ANCA vasculitis, are treated with rituxan and/or have kidney disease like @allie7764 @becsbuddy @molly48823 @3les54 @zenk @gingerw
You can read more from some of them in this discussion:
- Autoimmune mystery https://connect.mayoclinic.org/comment/282114/
Siosal, do you tolerate rituxan well?